DETROIT – The Detroit nonprofit NF Forward, which aims to accelerate treatments and cures for neurofibromatosis type 1, has rebranded to NFX.
“This new brand identity signals a bold chapter in the organization’s evolution and a deeper focus on clinical research, including studies and trials that directly impact people currently living with NF,” a release says.
BeNeFit, the signature fundraising gala for NFX, has raised over $75 million since 2013, according to the release.
NF1 is a genetic disorder affecting 1 in every 2,500 births and can cause tumors to grow on nerves throughout the body. While there is currently no cure, advances in research are beginning to unlock new possibilities for treatment.
With this rebrand, NFX aims to identify and support what it calls “X factors,” the individuals, institutions and ideas that are accelerating the path to more clinical treatments for NF patients.
“NF is a terrible disease that impacts the lives of millions of people worldwide,” said Dan Gilbert, Founder and Chairman of Rocket Companies, Co-Founder of Gilbert Family Foundation and Co-Founder of NFX. “Changing our name to NFX reflects our commitment to the global NF community as we continue to focus on supporting the kinds of bold, high-impact research that will crack the code of this complex genetic condition.”
NFX is part of a broader alliance of NF-focused organizations supported by Dan and Jennifer Gilbert that have collectively committed nearly $180 million to NF research.
Dan and Jennifer’s commitment to NF research began when their oldest son, Nick, was born with NF1. He died in May 2023 from complications of NF, but his parents said his optimism and passion continue to inspire this work every day.
“Nick taught us what it means to live with purpose and optimism,” said Jennifer Gilbert, Co-Founder of NFX and Gilbert Family Foundation. “With every step forward, we honor Nick’s memory and channel his passion into our mission to give families facing NF more answers, more options, and more support.”
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