Mom fights to keep coverage for daughter's rare gene therapy in Waterford

A Waterford 1-year-old living with an ultra-rare genetic disorder could lose her shot at lifesaving treatment if Blue Cross Blue Shield and Michigan Medicine don’t reach a new contract by June 30. Read: https://www.clickondetroit.com/news/local/2026/05/19/waterford-toddler-with-ultra-rare-genetic-disorder-could-lose-lifesaving-treatment-over-insurance-dispute/